|Confessions of a mom
about food allergies
No filters, No coating, No holding back,
Honest Real stories
|No one can take better care of my
child's food allergies than me.
If your child was born over fifteen years ago with
anaphylaxis food allergies no one could really help you
learn what you needed to do to keep your child safe.
Mothers instinct and asking God to guide you through
the journey was the only available choice.
In the early 1990's Internet was in it's infant stages.
There was almost no access to medical research papers
and information about food allergies was almost never
published to the public. Bloggers, tweeter, facebook
weren't around back then. With no Internet, managing
food allergies was left to what a doctor told you.
Having a child with any kind of food allergy, meant you
had to become a fast moving "human search engine"
and learn how to trust your instincts. Every minute you
didn't spend time doing something related to food
allergies could put your child's life at risk. Now that I
look back, his life was at risk every second during the
first ten years of his life but we were blessed because
nothing bad happened. Thank you GOD. Thank you
What most moms do but won't tell.
I never trusted anyone to feed my child. No one could
take better care of my child than me. During several
Food Allergy Teen Summits I had the pleasure of
meeting other moms that also felt as I do. After
spending several days during the past few years with
them and seeing everything they do and how they
always have their antennas high, watching their kids, I
can shout out....No one can take better care of a child
with food allergies than their own Mom.
How could I trust anyone when no doctor could
figure out what was making my child so sick.
I knew he had food allergies but why was he getting all
those skin rashes, and weird
cough? Every specialist we went to gave a different
diagnosis and a handful of prescriptions.
Why so many medications? Two Dr's said that he had
asthma. So I started giving him asthma medications.
They were really not working and I truly believed that
doctors were wrong and he didn't have asthma. "You are
on denial" was all I heard when I shared my thoughts
about his health.
I had to lie to get an appointment with an asthma
specialist who confirmed what I always knew, that
my child had food allergies and no asthma:
To get an appointment with a Dr who was an asthma
specialist at a medical research university, I had to say
that my son had really bad asthma and that I would
bring copy of his records. When I got there and they
asked about his medical history, I acted like I knew
nothing and told them that he had no medical records
because his doctor had left the country. When the
doctor started asking me questions, I lied again, I told
him that I wasn't really sure if my child had asthma
because no doctor had ever checked him for it. I also
had to bribe my child with a visit to Toys R' us so he
wouldn't tell them that I was lying.
I really needed to lie? I wanted my child to be seen
by a doctor who was also a medical professor and a
specialist in Children Asthma and I didn't want him to
be influenced by anyone's else opinion. After spending
more than three hours in this research facility, the
doctor concluded that my child didn't had asthma. I was
quite happy. The funny thing was that doctors used to
tell me that I has on denial and that my son had
asthma, and this last one said that I needed to "relax"
and to stop trying to be a doctor.
So was I on denial and too relax or was I too
hysterical and needed relax?
No one really understands the severity of living with
food allergies until you have to do so.
No matter how much educational efforts are been
implemented most people still believe that food allergic
reactions are just a simple rash, an itch, or just diarrhea
and vomiting, No matter what you do to educate those
close to you about food allergies, most believe that
moms like me are just obsessed and over dramatic
when it comes to our kids.
It's not easy to be a mom when no one seems to
believe that accidental ingestion of a small piece of
food could cause an anaphylaxis life threatening
It's not easy having food allergies and growing up with
an over attentive mom.
It's not easy growing up wondering if eating a cookie,
ice cream, or a small piece of a birthday cake will make
you so sick that you could die.
Food allergies....are weird
Food allergies are scary
Food allergies is one of those things that you
just have to "follow your instincts and follow the rules"
of staying away from foods unless you feel 100% sure
that you can eat it.
|If a child refuses to
carry his Epipen is
the parents fault
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